Our Make Birth Better Campaign
Our first campaign started in August 2017, during Birth Trauma Awareness Week, when Co-founder Dr Emma Svanberg shared a post on Instagram explaining the difference between Postnatal Depression and Post-Traumatic Stress Disorder.
Women contacted her throughout the day sharing their stories: how they had been deeply affected by their births but felt unable to speak about them. Emma analysed these stories with five themes emerging. The seed was planted for Make Birth Better.
“I came around an hour after he was born, to be told I’d been “asleep”. At that point I had no idea whether he had been born, whether he was alive.”
— F.C. - Theme 1: A force bigger than meTHEME 1A Force Bigger Than Me: the physical impact of birth.This theme described the physicality of birth. When this was positive, women were awed by the power of their bodies. When this was difficult, women were shocked by the arduous nature of birth, found pain difficult to manage and at times were left with physical injuries due to their experience.
The Themes
-
Theme 1 - A Force Bigger Than Me
This theme described the physicality of birth. When this was positive, women were awed by the power of their bodies. When this was difficult, women were shocked by the arduous nature of birth, found pain difficult to manage and at times were left with physical injuries due to their experience.
While intervention and even very difficult births did not always result in symptoms of trauma, many women described violations during birth which stayed with them long afterwards. And, frequently, fears for the safety of the baby arose. These four sub themes are detailed below.
SUB THEMES -in summary.
1. THE POWER I FELT: ‘I felt like superwoman’
When birth was positive - whether it was a natural delivery or a C-section, it was ‘life-changing’, ‘fantastic’, ‘amazing’, ‘extraordinarily intense and beautiful’, ‘special’. There was awe about the ability of the body ‘The power I felt that day is indescribable’, ‘My body scares me a bit now – it did this amazing thing’, and a huge sense of pride at what had been achieved ‘I felt like superwoman’, ‘The strength of being a woman is truly awesome’.
2. THE PHYSICAL IMPACT: ‘I was so drained’
Many of the stories described how exhausting birth was, and how difficult it felt to rest. Pain was often surprising, and described as ‘unbearable’, ‘ridiculous’ and ‘intense’. Women experienced medical emergencies, such as postpartum haemorrhage and pelvic fracture, or problems with infection, blood pressure and difficulty healing. Some described long-term health difficulties, leading to hysterectomy, bladder and bowel damage or a need for further surgery. A theme running throughout the stories, even when birth was relatively straightforward, was a sense that mum and baby were lucky to come out alive.
“It all feels a little hazy now but I remember how devasted and helpless I felt, I was convinced at this point that I’d lost my baby.”
— SS - Theme 1 - A force bigger than me
3. BEING VIOLATED: ‘They were so rough with me my husband had to tell them to stop’
Women described feeling physically transgressed, by the actions done to them ‘I feel like she violated me’, ‘being stitched up was a violence’, ‘felt brutal’, ‘everything during my labour felt like a war’, ‘it was comparable to a rape’. There were a number of occasions when actions were taken without consent ‘the midwife began cutting me down there without telling me (or getting consent), ‘I have no recollection of signing a consent form’, ‘[there should be] less intervention without consent’.
4. THE SAFETY OF THE BABY: ‘She told me I would harm myself and the baby’
There was fear throughout the stories of whether the baby would be OK, sometimes due to emergency situations but not always. Forceps deliveries were ‘brutal’, ‘no baby can survive this’, ‘baby was literally pulled out of me’. Women talked about hearing about foetal distress and being told that their babies were at risk ‘I remember being told to push properly or my baby wouldn’t make it’, ‘She told me I would harm myself and the baby’. On some occasions women were certain their babies had not survived – ‘I remember thinking that if they were going to have to fight for life but end up dying it would be kinder for them to die sooner rather than later’, ‘I was scared of birthing a stillborn baby’. Some babies were born unwell and taken to NICU, and mothers described being left not knowing whether their babies were OK – ‘I had no idea whether he had been born, whether he was alive’, ‘The doctors worked on her for 30 minutes before whisking her downstairs to the NICU’.
THEME 2Heroes and Villains: the influence of birth professionals.The second theme summarised just how important birth professionals are – and often this was individual members of staff. Women regularly felt very let down by those who they expected to support them. There was acknowledgement that this was often due to service pressures, although not always. Women also felt cheated by the information they had received prior to birth, noting that they needed more information about labour in general, and a more balanced view of birth.
-
Theme 2 - The influence of birth professionals
The second theme summarised just how important birth professionals are – and often this was individual members of staff. Women regularly felt very let down by those who they expected to support them. There was acknowledgement that this was often due to service pressures, although not always. Women also felt cheated by the information they had received prior to birth, noting that they needed more information about labour in general, and a more balanced view of birth (including the possibilities of intervention and recovery after birth). There were shining stars mentioned in many stories, most frequently in relation to support following the birth or in planning a second delivery. Partners were rarely mentioned as a source of support or conflict, but usually instead were mentioned in regard to their own trauma.
SUB-THEMES - In summary.
1. THE CARE NEVER COMES: ‘I felt very abandoned and scared, just completely uncared for’
The stories frequently had an ‘us and them’ feel to them, with women describing feeling unsupported and isolated – ‘nobody spoke to me, nobody comforted me when I started to shake and haemorrhage and vomit’, ‘I was told that I couldn’t have a shower and left waiting in a triage waiting room for my husband to collect me in blood stained PJ’s’.
At a particularly vulnerable time, women reported feeling abandoned by the staff around them ’39 hours of being ignored and scared’, ‘I felt very abandoned and scared, just completely uncared for’. Women felt pushed and pressured during birth, ‘we had to keep the doctors at bay who were pushing for intervention’, ‘from the very beginning I felt pressured and rushed’. Related to this, there was a sense that their own instincts were not being listened to – ‘This was the first time she even thought about checking how dilated I was…I was ready to push’, ‘after lots of pleading that something wasn’t right, they asked a paediatrician to check [my son] over. We’d both got sepsis’, ‘I was told to trust medical professionals over my own instinct.’
Women sometimes felt in the middle of disagreements between staff, ‘midwives were arguing’, ‘raised voices’, ‘one doctor telling me to push, midwife telling me to stop’. They also reported hearing how they were being spoken about, which could be disturbing when concerns were being raised ‘Doctor shouting he couldn’t find a swab inside me’, ‘awareness of the surgeon struggling’, ‘the surgeon was saying [about my placenta] ‘it’s piecemeal’.
There were examples of staff being rude, hostile or even verbally abusive ‘Doctor began screaming at me to push’, ‘The doctor humiliated me’, ‘She continually rolled her eyes at me’, ‘She was talking about me as if I wasn't there’. There was a lack of trust that professionals had the women’s best interests at heart, including after birth when there were a number of cases when note keeping had not been accurate: ‘She told us her shift was finishing at 7:30 and my little boy was born at 7:24pm - coincidence?’, ‘The ward nurses came and literally kicked me out of bed at 8am’, ‘there was nothing in the notes’, ‘none of this was recorded by the midwife’.
Women were also disappointed by the stories they’d heard before birth, with a sense that antenatal classes need to be more honest about the more negative possibilities of birth – ‘The expectation that every woman can have a normal birth sets women up to feel rubbish postnatally if she can’t’, ‘don’t hide the truth on what to expect, they could have explained how likely assistance will be, how pain relief is perfectly acceptable’, ‘Would have been easier if I’d never gone on the [hypnobirthing] course and instead spoken to women who’d had different kinds of births’.
2. THEY’RE OVERSTRETCHED:
‘I was sent back down after 3 hours as there was no one available’
Women were all too aware of the way in which cuts to services and understaffing were impacting on their births. They reported arriving at hospital to find there was no room for them, being told no midwives were available to deliver their baby, being seen by clearly stressed staff – or not being seen because of a lack of staff, and blamed poor aftercare on service pressures. ‘I was sent back down after 3 hours as there was no one available’, ‘[I was] without a midwife for significant chunks of time, and crucially when I was in transition’, ’The care was affected due to workload and staffing’, ‘with the budget cuts, they are failing to provide adequate aftercare’.
3. I WILL NEVER FORGET WHAT SHE DID FOR ME:
‘She truly cared about me having a positive birth’
TEven within the strained services though, there were shining lights. Key in this seemed to be helping women feel supported, ‘Obstetrician was fantastic, factual and supportive’, ‘Midwives [were] completely encouraging and supportive’, ‘She listened to me and rationalised my concerns’, ’I was well-supported and encouraged to allow things to unfold at their own pace’; and also safe – ‘I felt held and safe’, ‘made me feel safe’; treated with kindness – ‘[midwife] was amazing’, ‘there were a few midwives who were lovely’, ‘she truly cared about me having a positive birth’. The impact of these individuals was considerable ‘the consultant was the turning point’, ‘I got the most amazing midwife who I remember as my superhero’, ‘I will never forget what she did for me’, ‘[she] gave me back my belief in myself’.
4. HE WAS LITERALLY MY HERO:
‘I couldn’t have done it without him’
It’s worth mentioning how partners are described in the birth stories. On a couple of occasions they are heroic – ‘I couldn’t have done it without him really reassuring me’, ‘he was literally my hero’. But more often they are described by their exclusion – being left in a corridor while women are wheeled into theatre (‘my poor husband was left crying in the hall’), or being sent home while the birthing mother is left alone – ‘One of the things I really struggled with after a traumatic forceps delivery was the hospital not allowing my husband to stay at night, I think it would have made all the difference if I'd been allowed to have someone I trusted with me’. Their traumatic experience is described more fully in Theme 3, Delivery into Parenthood.
“I felt held and safe and had a peaceful birth with an incredibly swift recovery.”
— S.W - Theme 2: Heros and Villans
THEME 3Delivery into Parenthood: the wider-ranging impact on mental health and relationships.The impact of a difficult birth, of course, was not just physical. Psychological symptoms were outlined, as well as the wider ranging, long-term impact of these symptoms. Women also described the ways in which their births had impacted their relationships with their children. It influenced their decisions about subsequent pregnancies, with many choosing not to have further children.
-
Theme 3 - Delivery into Parenthood: the wider-ranging impact on mental health and relationships.
The wider-ranging impact on mental health and relationships
The impact of a difficult birth, of course, was not just physical. Psychological symptoms were outlined, as well as the wider ranging, long-term impact of these symptoms. Women also described the ways in which their births had impacted their relationships with their children, both in the immediate aftermath and in the weeks and months afterwards. It also influenced their decisions about subsequent pregnancies, with many choosing not to have further children due to their experience. Those who did, often had healing experiences with a high level of support. Finally, women described the trauma their partners had been left with.
SUB-THEMES - In summary
1. OUT OF MY MIND: ‘The pain kept returning in suffocating waves’
Women described a range of symptoms which would fit with psychological diagnoses of PTSD, anxiety and depression. Flashbacks and reliving the birth memory were described – ‘Months later the sight of that doctors grimace, the pain, fear, loss of control and the inhuman wail that rose from deep within me kept returning in suffocating waves – the crystalline clarity, colours sharpened, left me shaking my head trying to rid myself of them’, ‘nightmares’, ‘vivid memories’; complicated symptoms of anxiety were also reported about the birth itself – ‘complex stress reaction’, ‘unbearably anxious and rage filled’, ‘scared’, ‘hypervigilance’, but also a more general anxiety such as ‘worry about health’, ‘extremely anxious about [son’s] health. Women reported feeling a low mood and more serious symptoms of depression including suicidal ideas ‘worsening my moods’, ‘I felt numb’, ‘contemplated suicide’. Women often blamed themselves for their experience ‘pathetic’, ‘a sense of failure’, ‘shame was ever present’.
2. SOMETHING TRULY TERRIBLE: ‘It had a lasting impact on my mental health’
Women described a dawning realisation in the days, weeks and months after the birth that it had fundamentally affected them – ‘I started to realise that something truly terrible had happened to me’, ‘I walked in one person and walked out another’, ‘lasting impact on my mental health’. Feelings of guilt and shame were described – ‘Incredible sense of guilt’, ‘I was inadequate as a woman’, ‘I must have done something wrong’, ‘if only I’d been stronger’. There was a sense that this was not the way they should be entering into motherhood ‘your first birth delivers you into motherhood, it is literally the gateway to your mother self’, ‘alongside the tiredness and bewilderment of new motherhood, there should have been moments of joy’.
3. MISSING OUT ON BABY: ‘I didn’t even know what her beautiful face looked like’
In the initial moments after the birth, women felt that they missed out on the chance to bond with their babies – ‘missed out on those crucial first moments’, ‘didn’t feel immediate bond’, ‘I didn’t get the rush of love’, ‘I thought “I don’t know you, you’re not what I expected”’. Sometimes this was because babies were taken for special care, and mothers were left without their baby ‘she was placed on my chest then whipped away’, ‘I didn’t even know what her beautiful face looked like’.
Women described a sense of detachment from their children in the period after birth, which sometimes has never left them – ‘I felt a disconnect’, ‘I feel detached’, ‘the chance to build a connection was taken away’, ‘I remember making excuses not to go and see them’.
In situations where women or their children had physical problems following the birth, this had a further influence on their ability to parent as they would have liked, including difficulties breastfeeding – ‘I was advised not to breastfeed’, ‘I wasn’t producing enough milk’, ’I waited 5 days to hold them’.
For some, there was a sense of conflict over the love for their child and their continued trauma over their arrival into the world – ‘How do you explain to a child [their birth caused] your whole life [to be] turned upside down?’, ‘I feel like I had failed him’.
4. IMPACT ON PARTNER: ‘He thought it was the last time he saw us’
Partners were most often described as bearing witness to the trauma of the birth, ‘most brutal thing he has witnessed’, ‘one of the worst things he’d ever seen’, ‘distressed by what he saw’.
They were described as being left alone or isolated during the birth, not knowing what was happening ‘poor husband left crying in the hall’, ‘it broke his heart to leave us’, ‘he thought that was going to be the last time he saw us’. This had led to their own symptoms of trauma and distress ‘husband is more traumatised’, ‘he felt useless’, ‘massive impact on my other half’.
This also had an impact on the marital relationship ‘sex was out of the question’, ‘I couldn’t cope with him and the baby’.
5. TAINTED PREGNANCIES: ‘I absolutely wouldn’t do it again’
Many couples decided not to have further children as a result of their birth experience, even terminating subsequent pregnancies due to the fear of birth ‘I was so traumatized, I’m really not sure if I would be able to go through with having any more children’, ‘I absolutely wouldn’t do it again’, ‘husband is more traumatised, with a lot of reluctance to go back for another’.
For those who did have subsequent pregnancies, while they experienced anxiety during the pregnancy, often these experiences were very healing – ‘wonderful supportive home birth, helping to heal some of those earlier wounds’, ‘good birth to make up for bad’, ‘healing second birth’. This seemed to be due to women galvanising support and making firm plans for their births, including the decision to have an elective C-section in some cases – ‘I got a second chance and I grabbed it with both hands and all my heart’, ‘I took everything I learned from my first birth into my second’, ‘I read, I reflected’, ‘I hired a doula and I realised it was ALL MY CHOICE’, ‘I learned things that made my second birth experience vastly different’.
“I struggled to bond with my baby, I couldn’t breastfeed him, I felt like someone had given me somebody else’s three-month-old giant baby. I am surrounded by people who constantly talk like they have accomplished more because they gave birth naturally and breastfed and I’m ashamed to say it does make me feel like less of a mother or less of a woman.”
— S.H - Theme 3: Delivery into Parenthood
THEME 4I Had No Idea: the culture of secrecy around birth and birth trauma.This theme described the culture of secrecy and pressure to ‘suffer in silence’ throughout pregnancy, birth and the postnatal period. Women seemed to feel that they were unprepared for birth, that many things during birth came as a total shock. During and after birth, they described messages (both actual and imagined) that led them to feel that they could or should not speak about their feelings.
-
Theme 4 - I Had No Idea - The culture of secrecy around birth and birth trauma
This theme described the culture of secrecy and pressure to ‘suffer in silence’ throughout pregnancy, birth and the postnatal period. Women seemed to feel that they were unprepared for birth, that many things during birth came as a total shock. During and after birth, they described messages (both actual and imagined) that led them to feel that they could or should not speak about their feelings. This contributed to a general sense that the impact of their birth should be dealt with alone. When help was considered, women described not knowing where they could go for help. For those who did manage to seek help from services, or personal relationships, there was a clear message that talking about their experience was healing and positive.
SUB-THEMES - In summary
1. I HAD NO IDEA: ‘Expectations of birth are vastly different to the reality’
Throughout the stories there was an underlying sense that the reality of birth was a complete shock. Before birth, women felt that their expectations had been unrealistic – ‘the only stories I was told were of mums who had easy natural labours with no pain relief, if you had anything less you must have done something wrong’, ‘I had no idea what we were facing’, ‘for many people expectations of birth are vastly different to the reality they experience’, ‘hard to deal with a body that seems to be hard for babies to get out of’.
During birth, again there was a sense that information had been kept from them that they should have known prior to delivery – ‘I had no idea that a quick labour was possible’, ‘I wasn’t told to ‘inform myself’, ‘I had no idea what was normal’, ‘I wasn’t expecting it to hurt’, ‘I didn’t know enough’. This was exacerbated by professionals not communicating with women during labour: ‘nobody explained I was haemorrhaging’, ‘nobody really spoke to us about it’, ‘I didn’t feel anything was explained to me’.
Most surprising to many women was the difficult experience they faced once the baby had been born, being left alone without their partners in hospital with little support: ‘It was the aftercare when things went wrong’, ‘after birth was more traumatising’, ‘not allowing my husband to stay’.
2. STOP MAKING A FUSS: ‘A healthy baby is all that matters’
The stories contained a number of messages which women received during and after birth, which led to them questioning their feelings about their experience: ‘We were told there was nothing unusual about this and that my labour was normal, this added to the trauma really – being made to feel like somehow I just hadn’t coped with something that was so “normal”’, ‘Doctor telling me there was no need to cry’, ‘she told me to stop wasting time’, ‘stop making a fuss’, ‘pull myself together’. This was added to by cultural messages downplaying the maternal experience ‘you should be grateful your baby is here’, ‘so you had a bad birth? Baby OK? Well then, never mind’, ‘A healthy baby is all that matters’.
This led to women blaming themselves for their feelings: ‘Get over it’, ‘If only I’d been stronger’, and trying to manage their difficult feelings alone ‘I gritted my teeth and coped’, ‘I felt weak to admit I was struggling’.
3. THE SECRET SHAME: ‘We don’t want to be judged or criticised’
Throughout the stories women described their isolation, dealing with such difficult feelings alone. Partly, this was due to not wanting to admit their experience was so different to the ideal they had expected: ‘There is a stigma around how we should be feeling and how amazing, magical and beautiful the whole experience is supposed to be, even the slightest deviation from that and we clam up, not wanting to be judged or criticised, we just say ‘it’s fine’ and struggle on.’
Women were also reluctant to describe their experience, due to their self-blame and shame – ‘the secret shame among mothers’, ‘I blamed no one but myself’, ‘I was too embarrassed’. But also as a coping strategy, to avoid the difficult feelings that might be brought up – ‘I tried to repress the experience’, ‘coping mechanism to push it to one side’. Of course, having a newborn to focus on also meant that reflecting on the experience was easy to avoid – ‘I focused on the baby’, ‘pressure just to keep going’.
It was felt that others would be scared or burdened by hearing about the birth experience – ‘feel bad about sharing the details’, ‘do not want to scare others’ – but when women attempted to talk ‘no one wants to hear the gory details’, ‘whenever I tried to voice my fear, generally I was shut down’.
It should be noted that women also feared sharing their feelings ‘I felt that I would have the baby taken off me, so I soldiered on, unaided’.
4. NOWHERE TO TURN: ‘The lack of support I received was shocking’
Even when women did wish to talk about their experience, time and time again they felt that help was hard to come by – ‘I was never asked if I needed help’, ‘was not offered help’, ‘nobody asked how I felt or explained what happened’, ‘no one to talk to’.
This of course made women even more reluctant to seek help for their traumatic experience – ‘the lack of support I received from the NHS was borderline shocking’, ‘I knew something wasn’t right but my experience of seeking help pushed me away too’.
5. TALKING REALLY DOES HELP
For those women who received support following their birth, almost universally this was a positive experience. This took on various forms, simply sharing their story was helpful – ‘Birth debrief helped’, ‘talked me through my hospital notes, it was amazing’, ‘need to understand what happened’. Sharing the story particularly with other women was noted as helpful – ‘I got to debrief my first birth with many different amazing women and I also got to see it in different ways from different perspectives’, ‘need to speak to other women’, ‘encourage talking, just being ears and listening’.
Some worked to process the birth experience through therapy or other forms of support – ‘in just four magical sessions, my symptoms came way down’, ‘I put the work in, I went there’.
It was suggested that talking helped through shifting the sense of blame away from the mother and more to external factors – ‘this isn’t my fault’, ‘I did nothing wrong’, ‘I’d been blaming myself, everything that happened was inevitable’.
Occasionally, women did not gain any benefit from the support they were offered – ‘I’ve had CBT, tablets, mental health team, there is nowhere to turn for birth trauma’.
“I was riled by the misconception and false representation of birth.”
— E.M - Theme 4: I Had No Idea
THEME 5Make Birth Better: ideas to improve birth.During the campaign, women and birthing professionals were asked to include their thoughts on what would ‘make birth better’ in their stories: this was included as Theme 5. Dr Emma Svanberg divided these into messages applicable throughout the maternity journey: for pregnant women and their partners, maternity professionals and wider society. Theme 5 was a big accelerator for the start of Make Birth Better and encouraged Emma to write her book Why Birth Trauma Matters.
-
Theme 5 - Make Birth Better Ideas to improve
This theme described the culture of secrecy and pressure to ‘suffer in silence’ throughout pregnancy, birth and the postnatal period. Women seemed to feel that they were unprepared for birth, that many things during birth came as a total shock. During and after birth, they described messages (both actual and imagined) that led them to feel that they could or should not speak about their feelings. This contributed to a general sense that the impact of their birth should be dealt with alone. When help was considered, women described not knowing where they could go for help. For those who did manage to seek help from services, or personal During the campaign, women and birthing professionals were asked to include their thoughts on what would ‘make birth better’ in their stories: this was included as Theme 5.
Dr Emma Svanberg divided these into messages applicable throughout the maternity journey: for pregnant women and their partners, maternity professionals and wider society. Theme 5 was a big accelerator for the start of Make Birth Better and encouraged Emma to write her book Why Birth Trauma Matters. It reflected many of the themes already described, the need for pregnant women to be better informed about all of the different possible outcomes in birth, to be granted as much support and reassurance as possible during birth, and to seek help after a difficult birth if necessary.
Extract from the book: Why Birth Trauma Matters
Theme 5 in summary
“This extended to very clear suggestions for birth professionals too, again prior to, during and after birth. These centred around encouraging women to be informed of different possible outcomes and aspects of birth, but also underlined the need for women to feel respected during birth. Women spoke frequently about simply needing more time. This is something that not only needs to be heard by healthcare professionals, but healthcare prividers and commissioners too. As well as by all of us. Being prepared to give women time to explore their hopes and fears for birth, to support maternity professionals to do this, and to be open to discussing birth stories without offering platitudes would in itself go a long way to improving women’s experiences of birth.
“‘What would make birth better? Time. Everything felt so rushed. I saw seven different midwives and it took hours to get pain relief. I think if midwives have the time to support, listen and care for a woman in labour whether she is 1 cm dilated or 10. But yes, just more time would have been wonderful. After the birth too. You need someone to sit, listen and talk you through. Maybe offer a hand squeeze and a cuppa too.”
— L - Theme 5: Make Birth Better